STUDY THE LEVEL OF AWARENESS AMONG SINDHI FAMILIES OF DURG, CHHATTISGARH (INDIA): A QUESTIONNAIRE BASED STATISTICAL STUDY
Objective. The present study has been done with the following aims and objectives in mind: i) To determine the level of knowledge or awareness about Thalassemia among Sindhi families in Durg, Chhattisgarh regarding the cause and prevention of the disease and ii) graphically represents their Â status of awareness.
Methods. In this study, we have used a questionnaire method which is done among 12 Sindhi families and determined their response rate about Thalassemia. Data are collected by survey in Durg districts of Chhattisgarh that targeted Thalassemic Sindhi families, they are the members of Thalassemia Welfare Society (TWS), Raipur (Capital of Chhattisgarh)- it's an affiliated organization. We have examined the attitudes regarding management of Thalassemia disease (TD) through their responses against questionnaire and represented their responses using MATLAB 8.4.
Results. In our study, we have found that overall, 64.91% Â participants are females and 35.09% are males. Also 20% of respondents felt comfortable with the questionnaire method of TD. The frequencies of reactions were 20%, giving the right answers and 28%, giving wrong answers while half is not thinking about the given questionnaire.
Conclusions. We have obtained the knowledge level among Sindhi families is very poor about TD. Therefore variousprevention policies are must be organized to increase their knowledge about Thalassemia and improve Thalassemic children'ssurvival capability. Â
2. Balgir RS. The genetic burden of haemoglobinopathies with special reference to community health in india and the challenges ahead. Indian J Hematol Blood Transfusion 2002;20:2-7.
3. Grow K, Vashist M, Abrol P, Sharma S, Yadav R. Beta thalassemia in india: current status and the challenges ahead. Int J Pharm Pharm Sci 2014;6:28-33.
4. Rakholia R, Chaturvedi P. Prevalence of Î²-Thalassemia carrier state in Sindhi community of Wardha and evaluation of risk factors for Î²-Thalassemia trait. Nigerian J Clin Prac 2013;16:375-80.
5. Thakur S, Sharma R, Raw SN. Incidence of thalassemia and sickle cell disease in chhattisgarh, Central ndia: using hardy-weinberg equations. J Mol Genet Med 2015;9:155.
6. Paunipagar PV, Patil SKB, Singh CM, Arya RC. Sickle cell gene in trible area of rajnandgaon districts of chhattisgarh. Indian J Prev Soc Med 2006;37:143-7.
7. Balgir RS. Genetic disease burden, Nutrition and determinants of tribal health care in chhattisgarh state of central-east india: a status paper. Online J Helt Appl Sci 2011;10:1-7.
8. Das K, Dhas P, Sahu PN, Rao VR, Mohanty D. Abnormal hemoglobins (HbD and HbQ India) and Î²-Thalassaemia among the Indian Sindhis. Hered Gen; 2013.
9. Sukumaran PK. Abnormal Hemoglobins in India. In: Trends in Haematology. School of Tropi Med; 1975.
10. Agarwal MB, Varandani DG, Joshi RH, Bhargava AB, Mehta BC. Haemoglobin D disorders in 13 unrelated families. Indian J Med Res 1981;73:554-7.
11. El-Hazmi MAF. Care for people with haemoglobin disorders. World Heath Forum 1994;15:165-8.
12. Ahmadnezhad E, Sepehrvand N, Jahani FF, Hatami S, Kargar C, Mirmohammadkhani M, et al. Evaluation and cost analysis of national health policy of thalassaemia screening in west-azerbaijan province of iran. Int J Prev Med 2012;3:687â€“92.
13. Colah RB, Gorakshakar AC, Nadkarni AH. Invasive and non-invasive approaches for prenatal diagnosis of haemoglobinopathies: experiences from India. Indian J Med Res 2011;134:552-60.
14. Kukreja A, Khan A, Xian L, Razley Rahim Z. Awareness of thalassemia among rural folks in penang, Malaysia. Int J Health 2009;12:1.